Support the Work
Donate
Hui Pohala’s fiscal sponsor is Kokua Mau, a 501(c)3 organization. The EIN is 99-0339201.
Please make check payable to: Kokua Mau and indicate HUI POHALA on memo line
Mail to: Hui Pohala ℅ Kokua Mau • PO Box 62155 • Honolulu, HI 96839
OR you can donate online
Your generous donations will help to fund:
1. Collection and analysis of data in order to:
- Demonstrate the need for palliative care services, by island and region
- Establish a baseline and measures to track progress toward increasing access
- Track the positive impact of expanding access on a regional basis
- Track size and location of trained palliative care workforce and the links between specialty palliative care and primary care, by island
2. Mentoring for:
- Rural home-based agencies which provide palliative care
- Palliative care leadership development
3. Financial support for:
- Workforce training and communities of learning
- Strengthening linkages between specialty palliative care and rural primary care
4. Reports
- Annual report which tracks progress, using the initial report as a baseline
- Special report: palliative care and underserved communities
Learn more or Volunteer:
Work on Hui Pohala work teams:
Contact Crystal Costa, ccosta@huipohala.org or Rae Seitz, rseitz@huipohala.org
Stay connected with the coalition:
Proposed initial tactics of the work teams:
Preliminary plan for work teams to reduce barriers to access:
1. Expanding and strengthening the palliative care workforce
- Promoting palliative care skills via online or in-person training for all providers, including physicians, physician assistants, nursing, social work, and chaplaincy
- Leveraging/expanding existing curriculums in Hawaii-based professional schools
- Strengthening links between specialty palliative care and primary care providers
2. Growing awareness of the value of palliative care for providers
- Working with medical and specialty societies to share information
- Engaging primary care providers and specialists around the benefits of palliative care for their patients with serious illness
- Popularizing stories which reflect improved quality of life and satisfaction of patients/families who received palliative care and the providers who referred them
3. Growing public awareness of the value of palliative care for people, families, caregivers
- Reviewing CAPC research on messaging, then promoting clear and simple messages, identifying and using secondary messages for more precise focus on target audience
- Customizing communication materials for specific communities
- Maximizing regional networks for community outreach
- Developing materials to inform policy makers
4. Facilitating the development of a common model, standards, and measures for palliative care of seriously ill patients
- Review, summarize, and share relevant literature and “model” programs
- Facilitate stakeholder dialogue to reach consensus on the essential palliative care standards including required roles, services, and functions
- Facilitate stakeholder dialogue to reach consensus on key measures of access, quality, value and outcomes
5. Developing sustainable financing of palliative care
- Addressing current misaligned of payment
- Demonstrating the business case for PC
- Supporting organizational capacity to provide high quality palliative care
